We are very pleased to announce that there are already 40 patients enrolled in EPISTOP. Yesterday new patients have been included to the study in Vienna and Warsaw. Congratulations!

The Tor Vergata team (supervised by prof. Paolo Curatolo, leader of WP7) invites all psychologists involved in neuropsychological assessment of EPISTOP patients on online trainings. These trainings are organized to illustrate how to use the neuropsychological instruments and discuss with psychologists the results to be included in the database.

Schedule of the meetings:

  • 10th of March 2015: administration of Bayley Scales of Infant and Toddler Development
  • 14th of April 2015: administration of ADOS
  • 26th of May 2015: parents implementation

Next Scientific Steering Committee meeting will take place in Rome on 18th-19th of June 2015. During the meeting all work package leaders of EPISTOP project will meet to discuss current issues.
The special session for psychologists will by organized by prof. Paolo Curatolo, leader of WP7 (neuropsychological part).

Moreover clinical sites representatives will participate in post-meeting workshop:
‘Early onset epileptic encephalopathy or genetically determined encephalopathy with early onset epilepsy? Lessons learned from TSC"

The aim of this close workshop is to review and to discuss together the pertinent literature related to this EPISTOP related topic.
We are looking forward to see all members of EPISTOP Scientific Steering Committee!

Last week three new patients have been enrolled to the project – 1 in Italy and 2 in Poland. All together we have 38 patients in the study and 7 clinical sites out of 8 are actively recruiting. We are looking forward to include next patients soon!

We are pleased to announce that the first patient has been enrolled to EPISTOP in Vienna. Congratulations to prof. Martha Feucht and her team.