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The objectives of this impact publication on EPISTOP are:
- to gather much needed knowledge and insight into epilepsy so as to remove the veil of mystery which surrounds the disease and understand those most at risk
- to develop a means to diagnose the disease before seizures strike, thus reducing the risk of long-term damage to the brain
- to improve the drug treatments available to patients with Tuberous Sclerosis Complex (TSC)
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The 2nd General Assembly Meeting within the EPISTOP project took place on November 17-18, 2016 in Prague, Czech Republic. The meeting was moderated by dr. Pavel Krsek, who is the head physician in the Department of Paediatric Neurology of the 2nd Faculty of Medicine and University Hospital Motol.
During this meeting, the progress and issues of each work package were presented. Successful discussions were held about various aspects of the project: sampling, protocols, scientific research, administration and dissemination. More specific issues were addressed in the clinical and molecular group. According to the Scientific Advisory Board members EPISTOP in general is a visionary study and one of the few that reached the inclusion target of 100 patients.
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The EPISTOP project recently has been presented at the STSN (Stichting Tubereuze Sclerose Nederland) symposium by prof. dr. E. Aronica and at the "2nd meeting on inflammation and immunity in epilepsy" in Milan by prof. dr. S. Jozwiak.
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We are pleased to inform that we have finished the recruitment period in EPISTOP project with 101 patients included to the study. Thanks to involvement of all clinical sites our recruitment goal (100 patients) has been achieved. Now we continue with the follow-up of our patients to provide the best care and obtain high quality clinical data.
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The 2nd Steering Committee Meeting within the EPISTOP project took place on June 17-18, 2016 in Amsterdam, The Netherlands. The meeting was moderated by prof. Eleonora Aronica and attended by all work package leaders. During this meeting, the progress and issues of each work package were presented.