We are pleased to announce that EPISTOP project has been numbered among best 7th Framework Programme projects at Informal Meeting of Ministers for COMPET (Research) in Amsterdam during the Netherlands Presidency of the Council of the EU in January 2016. We present the document ‘Achievements of FP7, examples that make us proud’.


Recently we included few new patients in clinical centers participating in EPISTOP project. Thanks to cooperation between clinical centers, patients’ associations and  extensive dissemination activities we have now 76 patients included to EPISTOP.

Last week two new patients have been included in the study in Poland. In total we have 68 patients in our study!

The 1st General Assembly Meeting within the EPISTOP project took place on November 16-17, 2015 in Berlin, Germany. The meeting was moderated by dr. Bernhard Weschke. He is a pediatric neurologist at Charité – Universitätsmedizin Berlin. Representatives of each Partner of EPISTOP project and members of the Scientific Advisory Board attended the meeting.

During this meeting, the progress and issues of each work package were presented. Successful discussions were held about various aspects of the project: recruitment of patients, sampling, protocols, scientific research, administration and dissemination. More specific issues were adressed in the clinical and the molecular group. According to the Scientific Advisory Board members EPISTOP in general is a visionary study.

Currently 65 patients are included in our study so far. We hope to enroll more patients in the next 6 months, since the recruitment period will end in June 2016.

On behalf of AMC – Academisch Medisch Centrum, host of the Steering Committee Meeting 2016 of EPISTOP project, we are delighted to inform you that this meeting will take place on the 17th and 18th of June 2016 in Amsterdam, The Netherlands.

The meeting will be attended by the leaders of the work packages. We will discuss progress in project implementation and make strategic decisions.