On October 20-21, the General Assembly meeting took place in the great beguinage (UNESCO world heritage) in Leuven, Belgium. It was a highly productive and inspiring meeting, attended by all consortium members and the scientific advisory board members.
An educational session on the EPISTOP project took place at the DEA Pit Stop meeting on neurology, EPISTOP and TAND in Leuven, October 19-20 2018.
Prof. S. Jozwiak gave a general overview of the objectives and study design of EPISTOP, followed by a presentation of the preliminary EEG results by prof. L. Lagae.
The epiXchange conference took place May 23, 2018 in Brussels. The main goal of this conference was to showcase major findings from seven large European epilepsy research projects, amongst which the EPISTOP project.
The full live stream of the epiXchange conference can be found by clicking here.
An overview of the EPISTOP project was given by prof. S. Józwiak (21:29).
Afterwards, EPISTOP was represented in the different thematic sessions:
1. Translational research in biomarkers
"EEG changes as biomarker for emerging epilepsies in TSC" by prof. L. Lagae (1:28:26)
2. Genetics of epilepsy - Therapeutics implications
"Genetics and Mosaicism in Tuberous Sclerosis Complex: preliminary analysis of association with seizure phenotype in
EPISTOP" by prof. D. Kwiatkowski (2:22:37)
3. Innovation Therapeutics & Translation
"Preseizure vs postseizure treatment of epilepsy - pros and cons" by prof. S. Józwiak (3:34:56)
4. Understanding Co-morbidities in the Epilepsies
"Autism in Tuberous sclerosis: early developmental trajectories, potential biomarkers and treatment strategies" by prof. P.
5. Biobanks and Databases - Basis for Translational Research
"Biobanking in Tuberous Sclerosis Complex: challenges and opportunities for understanding epilepsy and cognitive and
behavioural co-morbidities" by prof. E. Aronica (6:05:57)
Below you can find the presentation of prof. S. Józwiak on the structure of the EPISTOP project:
On October 19-20, the Belgian TSC association (be-TSC) is hosting the 2018 DEA Pit Stop jointly with E-TSC, the European TSC Association. The focus will be on neurology, EPISTOP and TSC-associated Neuropsychiatric Disorders (TAND).
Leading researchers on this years topics include prof. Sergiusz Józwiak (EPISTOP) and prof. Petrus de Vries (TAND). Major contributions on the subject of behavioral issues will also be made by Lucy Wilde (PhD Bsc, University of Birmingham), dr. Agnies van Eeghen (MD PhD, Erasmus MC Rotterdam), the Dutch TSC- and- behavior Expertteam (ETSCG) and the TSC teams of the University hospitals Brussels (Prof. Anna Jansen) and Leuven (Prof. Liesbeth De Waele).
The full program can be found here.
The international Tuberous Sclerosis Complex Research Conference (TSCi) recently took place in Tokyo, Japan on September 13-15, 2018.
The topics covered, ranged from mechanisms, over preventive and novel therapies to improving quality of life in TSC.
EPISTOP was well represented during the different sessions through lectures given by prof. dr. S. Jozwiak, prof. dr. K. Kotulska, prof. dr. P. Curatolo, prof. dr. D. Kwiatkowski and prof. dr. A. Jansen.
Also, our EPISTOP movie was shown with japanese subtitles.